10 Dementia Helplines You Need to Know

September 10, 2023
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Bre'anna Wilson
March 6, 2023
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We understand that finding the right resources can be overwhelming, which is why we've compiled a list of helpful helplines that can offer guidance and direction. Please know that you are not alone and there is support available to help you navigate this journey with care and compassion. If these helplines aren't able to offer you the help you need, feel free to contact us — Bambu Care is always here!

Alzheimer's Association Helpline

A free 24/7 helpline that is available 365 days a year to provide support and information to people living with dementia, caregivers, families, and the general public. They also have an interpreter service that accommodates more than 200 languages — impressive!

Phone Number: 800-272-3900, then dial 711 to connect with an operator

Webchat: alz.org (green live chat button)

Hours: 24/7 ; call them now :)


Alzheimer's Foundation of America Hotline

A free hotline run by licensed social workers for people impacted by Alzheimer's Disease. The helpline is available via phone, text, or chat. According them, no question is too big or too small — so, try them out!

Phone Number: 866-232-8484

Text Number: 646-586-5283

WebChat: alzfdn.org

Hours: 9am – 9pm EST, 7 days a week


The Association for Frontotemporal Degeneration (AFTD) Helpline

According to the AFTD, the helpline is their most important resource for anyone looking for information, resources, and support related to FTD. Yes, it's free!

Phone Number: 866-507-7222

Hours: Monday to Friday: 9am – 5pm EST

Email: info@theaftd.org 

*wait time may be higher than usual due to recent FTD media coverage*


Lewy Body Dementia Association (LBDA) Lewy Line

Free support services for people living with Lewy body dementia and the people caring for them.

Phone Number: 800-539-9767 (voice message service only with return call service)

Email: support@lbda.org

Hours: return calls Monday through Friday

*they are only able to return calls from the US


Hydrocephalus Association Helpline

Free helpline that can answer questions and refer you to helpful educational resources and support programs for hydrocephalus.

Phone Number: 888-598-3789

Email: info@hydroassoc.org

Hours: Monday to Friday: 9am – 5pm EST 


Creutzfeldt-Jakob Disease Foundation, Inc. Helpline

Free helpline to answer questions and offer support to people caring for someone with a suspected or confirmed CJD diagnosis.

Phone Number: 800-659-1991, ask for Debbie or Lori

Hours: Monday to Friday: 9am – 5pm EST 


NIA’s Alzheimer’s and related Dementias Education and Referral Center (ADEAR)

Provides free Alzheimer's and related dementias information for people living with dementia, friends, family, health care professionals, and researchers. Services available in English and Spanish.

Phone Number: 800-438-4380

Hours: Monday to Friday: 8:30am – 5pm EST


The National Dementia Helpline (based in Australia)

A free 24/7, 365-day telephone, webchat, and email service that provides information and advice to people living with dementia or mild cognitive impairment as well as their family, friends, and carers. They can also provide emotional support and connect you to Dementia Australia and community services and programs.

Phone Number: 1800 100 500

Webcat: dementia.org.au/helpline/webchat

Email: helpline@dementia.org.au

Hours: 24/7, call now :)


Alzheimer's Society Dementia Support Line (based in UK)

Offers personalized support and advice. They have interpreters available in multiple languages.  

Phone Number: 0333 150 3456


Monday to Wednesday: 9am – 8pm GMT

Thursday and Friday: 9am – 5pm GMT

Saturday and Sunday: 10am – 4pm GMT

*Calls charged at standard local rate


Age UK Advice Line (based in UK)

A free, 365-day national phone service for older people and their friends, family, carers, and professionals. They are known for sending helpful guides or helping you locate local services in your area.

Phone Number: 0800 678 1602

Hours: 8am – 7pm GMT, 7 days a week


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